The Burlingames

Chronicling the adventures of the B's

Still there…

by Megan

We are still in the hospital but making some good progress. The doctors are optimistic that the chest tube could be coming out soon (1-3 days – but could be longer). Once the tube is out, we’ll get to go home within a few days after that. Yay!

Chest tube – The drainage seems to be slowing down, which means it is starting to dry up. This is GREAT!!!!!!! Eli has been up and moving around a lot these last 2 days, the doctors have told us he needs to walk a minimum of 5 times a day. We’ve been pushing him to go further for longer.The more he moves around the more fluid drains out.

Meds – The medicine taking has gotten a tiny bit better. We are still having to ‘force’ most of them in his mouth but he isn’t spitting out as much as before.

Incentive – His incentive for doing so well with taking his medicine, going for walks, listening to us/nurses/doctors have been putting stickers on a sticker chart. I’m wondering if this is something we’ll have to continue doing at home, if so, we’ll get stickers.

Please keep praying! We are so ready for life to resume to ‘normal’ (aka – everyone at home).

Specific Prayer Requests

by Megan

We have some very specific prayer requests and ask that you join us in praying.

1. Pray that all the ‘unnecessary’ fluid in Eli’s body would drain out, dry out and stay dry for over 24 hours. As soon as his chest tube drainage dries up and is dry for 24 hours, we are able to go home.

2. Pray that Eli will start complying and taking his medication without any fuss. He is currently throwing a fit each time and spitting out much of the meds. This is frustrating the nurses, doctors and us – we’ve tried so many tricks and can’t seem to make it work. (Please let me know if you have any tricks that have worked for you or your little ones).

3. Pray that Eli will start eating more consistent meals, this will help with the medication regulation.

4. Pray for me, I’m so ready to be done with all of this and to go home with my boys. I don’t get to see Dave or Noah much and I miss both of them. Eli can sense my frustration and it causes him to stress out as well. My heart is hurting – my little man is suffering, I don’t get to see Dave much and I miss my sweet little baby.

Thank you so much for praying for Eli, for us and for Noah. We truly appreciate your prayers.

 

Baby Steps

by Megan

That’s what we’re taking today, baby steps. Baby steps are much better than peddling backwards.

Eli took a turn for the best yesterday evening. After the additional chest tube went in, some fluid came out and he took a nap, he was doing SO much better. Dave said last night he was so chipper when he woke up from his catnap, he ate a bunch of food and got up and moved around.

Today he’s gone for several walks and wagon rides. He found a kid’s sized shopping cart and LOVES to push that around. He has eaten a bunch of food and has watched several movies already today. In between each walk, he likes to sit in the chair and rest, before going out for walks again.

We are so thankful he is doing so much better. They have officially put the ‘step down’ label on his chart. Meaning – they don’t need to take his vitals as often as before and can leave him alone for longer periods of time. Whoohoo!!! Praise God!!!

Update

by Megan

Good news and more prayers!!

Good news – Eli’s chest tubes and catheter are OUT!!! This is huge! Less tubes! He did some eating and drinking today, much better than yesterday. He hasn’t been too keen on taking his medication today (probably due to all the puking he did yesterday).

Prayers – Eli needs to get up and move around. Right now he is so content to just lay there and do nothing. We need him to get up and move around, this will help the healing process. They also hope this will move the fluid, that is still on his lungs, out of his system.

So pray that he will move around and the fluid will clear off his lung.

Also, please pray for Noah as well. We went to the ENT today and he still has fluid in his ears (no infection – thank goodness). Now Dave and I need to decide what to do – tubes or no tubes. Pray the fluid clears up.

Correction/Update

by Megan

Just wanted to add a correction. I was wrong, the fluid on/in his lung is not gone yet. The amount is less than yesterday, but not completely gone.

Update…

He has been resting all day. He really hasn’t been awake for long periods of time. The nurses and doctors are pleased that his rest is not drug induced but more of his own submission to sleep. He threw up two times this morning and really hasn’t eaten or drank much today.

He still has his chest tubes and oxygen tubes on. Dr. Moga hasn’t been back yet to look at his chest tubes. Those might stay in until tomorrow, we’ll see.

They’ve been reducing the amount of oxygen to work on regulating his stats. His stats dip when his oxygen gets reduced too much, but they hope when he gets up and gets moving around they can start to regulate themselves again.

Thank you for all your prayers. Lots of love to you all!!