The Burlingames

Chronicling the adventures of the B's

Day of changes…

by Dave

Today has been such a wonderful day. The doctors have stopped the continuous nose feedings and have him eating from a bottle every few hours. Now he gets to experience what it feels like to be hungry, so far he is doing a great job with the bottle feedings. His speech therapist will be pleased to know that he is eating most of his bottles, leaving only a little bit for his feeding tube. This is a huge ‘praise God’ moment, we are that much closer to bringing him home. Yay!!

Eli is also in a new room. They moved him up to the third floor to the Pediatric Intermediate Care Unit (IMC). The IMC is much nicer that PICU and NICU. Eli now has his own room with a TV, couch/bed, closet space, recliner and his own bathroom. He was so excited about the transfer that he slept through the entire thing.

Eli’s new room number is 3128 and the phone number for this room is 612.874.4978.

Progress

by Dave

Eli is continuing to progress at a rapid rate. He lost a few more lines the last couple days and is down to just a few things. The doc gave us an estimate of 3-10 days remaining in the hospital, depending on how well he eats.

Megan went back this afternoon to hang out with the boy. While there, she gave him a bottle and he ate it quite well and quite fast. There’s talk of him possibly moving out of the PICU tomorrow to his own recovery room upstairs. Here’s hoping.

Eli started our visiting time this morning by sleeping, but, before long he was wide awake. We had a great time holding him and pinching his chubby little cheeks. He was also practicing his smile. Here’s a look at one of his smiles. The timing of the photo wasn’t quite perfect, so his smile looks a little funny. Trust me, it was a very good smile. You’ll also notice that he’s finally wearing clothes. Yesterday was the first day he didn’t spend naked.

Face-shaking Fun

by Dave

Eli had a good day of eating yesterday. However, he didn’t eat quite as much as the docs would have liked, so they put the feeding tube back in last night. He also finished taking another drug yesterday. His amounts on some of the others were much lower today as well.

He’s been sleeping really well and acting very content, at least when his diaper is clean. We can tell he needs to be changed when he’s crying and his pacifier won’t make him stop. It’s kind of funny, because you can see him crinkling his face a bit, and then he’ll start crying. One quick look usually confirms that he’s dirtied his diaper.

Here’s a look at Eli feeding. The pic is from yesterday and video is from today.

http://www.youtube.com/v/6D-TcEom4Gg&hl=en&fs=1&rel=0

New Eli Video

by Dave

http://www.youtube.com/v/UYmsNOBcR28&hl=en&fs=1&rel=0

Eli has a Face!

by Dave

Eli came off the ventilator and feeding tube today. He actually has a face under all that stuff. We haven’t seen him without something in his face since he was born. He’s a pretty good-looking kid. I’ll post some more video tonight after work (and visiting the boy). For the time being, here’s Eli. The first is of Eli right before they took out the tubes. The second is his face.